Home » Education » Information & Resources

Information & Resources

Community resources specific to a person with a brain injury are growing and developing. Most of the mentioned resources are for people with disabilities that include brain injury. Designated services for individuals with a brain injury are specified.

Brain Injury in Wisconsin: A Survivor’s and Caregiver’s Guide, the 2016 publication from the BIAW, is available as a review copy in .pdf format by clicking here biaw-guide-2016-121316-edit. If you would like to offer feedback before this goes to print, send your thoughts to admin@biaw.org.

Brain Injury Resources

Below is a listing of web sites related to brain injury. A brief description follows each title. They are listed in alphabetical order.

Index

General Information on Brain Injury

Pediatric Links

Caregiver Resources

Organizations Related to Brain Injury

Wisconsin Government Offices

National Agencies and Offices


 

General Information on Brain Injury

United States Brain Injury Alliance is committed to improving lives through awareness, prevention, advocacy, support, research and community engagement.

Brain Injury Association of America – contains the National Directory of Rehabilitation Services, state brain injury offices, information on prevention and cost, upcoming conferences, articles, ask the doctor, and pediatric information.

Brain Health, Dr. Dianeneuropsychologist and brain injury survivor with experience, knowledge, and ability to help.

Brain Injury Center – Services & Resources on this site reflect the best practices in the field of  Traumatic Brain Injury

Brain Index – Information on brain injury, from concussion to coma. Links to advocacy, coma, Brain Injury Association, and others. Online support groups and online chatrooms.

brainline.org – Brain injury facts, information, symptoms and support. Resources for preventing, treating, and living with brain injury.

Center on Brain Injury Research & Training – information on brain injury research and training

Centers for Disease Control and Prevention (CDC): Traumatic Brain Injury – facts about concussion and brain injury, and where to get help. Free booklet with statistics, prevention, and mild brain injury.

Coma Recovery Association (CRA) – a non-profit organization, located in New York. Contains documents, online library of various topics.

Lash and Associates Publishing/Training On-line catalog of tip cards, manuals and books specially written for parents, educators, and clinicians.

Milwaukee Center for Independence – MCFI Nexday has a comprehensive brain injury recovery program helping individuals regain independence at home, in the community, and at work. We provide community based services and treatment built on evidence based care and research to effect recovery and positive outcomes for persons with brain injury.”

National Resource Center for Traumatic Brain Injury  -FAQs on Brain Injury, including problems after brain injury and special issues.

Traumatic Brain Injury Resource Guide – 30 sections, i.e. brain map, mild head injury, bookstore, support groups, pharmacology, research grants, conference calendar.

Traumatic Brain Injury Survival Guide – By Dr Glen Johnson, this is an online book with a section on coping with common challenges

tbilife.com A website dedicated to survivors to help them deal with the many frustrations, Q&A from survivors from around the world, poetry

Understanding Brain Injury: A Guide for the Family – by Mayo Clinic – This booklet contains information on the human brain, causes of acquired brain injury, the recovery process, and behavior, communication and physical changes after brain injury

While You Are Waiting – Site dedicated to people who have a loved one in a coma. Information and emotional support. Features coma stories, advice, anatomy, ICU guide for families, frequently asked questions, legal and financial issues, advocacy in the hospital and nursing home.

Wisconsin Department of Public Instruction, Traumatic Brain Injury information – contains TBI definition and eligibility, TBI Resource kit, CESA contacts.

Back to Top


Pediatric Links

Brain Injury Quick Guide – Information and Resources for Teachers and School Staff.

BrainLine Kids – Brain injury facts, information, symptoms and support with a focus on youth. Resources for preventing, treating, and living with brain injury.

Coaches Toolkit  – this link is for information for athletic coaches.

Heads Up: Concussion in Youth Sports – To help ensure the health and safety of young athletes, CDC developed the Heads Up: Concussion in Youth Sports initiative to offer information about concussions to coaches, parents, and athletes involved in youth sports. The Heads Up initiative provides important information on preventing, recognizing, and responding to a concussion.

Milwaukee Center for Independence Pediatric Resource Page

National Center on Shaken Baby Syndrome – this web site offers information, ideas and answers for parents and caregivers who are struggling to cope with a crying baby.

Neuropsychological Assessment – A neuropsychological evaluation is often completed soon after an individual has a traumatic brain injury or if an individual seems to be having difficulties related to an undiagnosed brain injury from the past. This handout outlines what a neuro-psychological evaluation is and how the results can be beneficial.

Safe Kids Worldwide – information on helmet and safety belt use.

Understanding Pediatric Brain Injury: A Guide for Parents and Teachers – A publication from Mayo Clinic for parents and teachers.

Wisconsin Department of Public Instruction – gives eligibility criteria for children with TBI and lists training for professionals.

Back to Top


Caregiver Resources

Caregiver Action Network  serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease.

Caregiving and Brain Injury

Caregiver Journey – starting your caregiver journey – videos and resources guide a caregiver journey

Defense and Veteran’s Brain Injury Center – Family caregiver support after TBI

Family Caregiver Alliance – fact sheets, online support, legislative alerts, newsletter.

Traumatic Brain Injury: A Guide for Caregivers of Service Members and Veterans –  becoming a family caregiver, family caregiver curriculum.

Trymunity.com – a non-profit organization increasing awareness and providing support to individuals and families suffering from traumatic brain injury (TBI) through an online social community for survivors and supporters of shared stories, ideas, suggestions, and words of encouragement

 Well Spouse Association – support for spousal caregivers


Organizations Related to Brain Injury

American Brain Tumor Association – Research, information, and resources.

American Council on Education – Go to ACE programs, then to HEATH Resource Center. Information concerning post-secondary education and individuals with disability.

Epilepsy Foundation – Contains research, news, educational material, and publications.

Waisman Center – Family Village Project – Resource concerning disability and children. Can connect with other parents with children with similar challenges or needs.

Special Education Survival Guide – Has articles, checklists, sample letters, charts & resources; Has a “Yellow Pages” for kids with disabilities; is the companion website towww.wrightslaw.com

HEATH Resource Center – Information concerning post-secondary education and individuals with disability.

Medicare Rights Center (MRC) – is the largest independent source of health care information and assistance in the United States for people with Medicare.

Medical College of Wisconsin – Education, research, patient and community care.

Milwaukee Center for Independence –  

National Center on Physical Activity and Disability (NCPAD) – encourages persons with disabilities to participate in regular physical activity as a means of promoting healthy lifestyles and preventing development of secondary conditions. Variety of resources for persons with disabilities. Also has research citation searchable database.

National Parent Network on Disabilities –  All types of legal, advocacy, and educational information to empower parents as the service coordinators of a child with special needs.

Parent Advocacy Coalition for Education Rights – Provides national list of Parent Training Information Centers. Information on all aspects of special education and advocacy written specifically for parents.

National Stroke Association

Well Spouse Association a non-profit 501 (c)(3) membership organization, advocates for and addresses the needs of individuals caring for chronically ill and/or disabled spouse/partner. Offers peer to peer support and educates health care professionals and the general public about the special challenges and unique issues “well” spouses face every day.

www.wiccbd.orgWisconsin Council for Children with Behavior Disorders, division of national Council for Children with Behavior Disorders (www.ccbd.net) and parents organization Council for Exceptional Children (CEC).

www.wisha.orgWisconson Speech-Language Pathology and Audiology Professional Association (WSHA-P). Professional support, public awareness and advocacy.
www.wistech.org Assistive technology information network. Information on products, services, selecting, funding, installing, and using assistive technology.

www.wrightslaw.comSpecial Education Law & Advocacy

www.wrp.org Wheelchair Recycling Program-Mobility Store, offers low cost, refurbished and sanitized mobility and medical equipment to those who lack the resources to acquire new equipment.

Back to Top


Wisconsin Government Offices

WI Department of Health and Family Services

WI Department of Public Instruction – go to Divisions and Teams, then to Special Education Team, then to Special Education Programs/Resources.

DPI, TBI page – contains TBI definition and eligibility, TBI Resource kit, CESA contacts.

Division of Workforce Development – Department of Vocational Rehabilitation

Wisconsin Council on Developmental Disabilities (WCDD) – the WCDD plans and advocates for adequate and appropriate supports for people with developmental disabilities in Wisconsin. Created DAWN, (Disability Advocacy: Wisconsin Network), an e-mail network of people who act on disability issues. DAWN web: www.wcdd.org/dawnsignup.htm

WI Health and Hospital Association

A guide to Wisconsin – government, education, Human Services, etc – has contact information to the state legislatures and the Governor.

www.dhs.wisconsin.gov/bdds/IRIS – a guide to the new “Include, Respect, I Self-Direct” program.

Back to Top


National Agencies & Offices

www.disAbility.gov – federal government site, links to disability resources.

Department of Health and Human Services

Health Resources and Services Administration

Maternal and Child Health Bureau

National Council on Disability

National Family Caregivers Association

National Youth Sports Safety Foundation – NYSSF increases public awareness by establishing and promoting high prevention standards in sports.

Social Security Administration

U.S. Department of Justice, Americans with Disabilities Act (ADA)

Back to Top

Wisconsin CBIS / CBIST as of 9/22/2014

The Brain Injury Alliance of Wisconsin is committed to providing information and resources to individuals with a brain injury, their families and professionals.

BIAW is pleased to offer a listing of Wisconsin Certified Brain Injury Specialists (CBIS) and Trainers (CBIST). These professionals have been certified with The Academy of Certified Brain Injury Specialists (ACBIS). View and print a list of CBIS and CBIST professionals within the state

ACBIS offers a voluntary national certification program for both entry-level staff and experienced professionals working in brain injury services. ACBIS provides staff and professionals the opportunity to learn important information about brain injury, to demonstrate their learning in a written examination, and to earn a nationally recognized credential.

This list can be used to identify those individuals who are Certified Brain Injury Specialists (CBIS) and Certified Brain Injury Specialist Trainers (CBIST) and the organizations in which they work. This shows that the organization has the resources to address your needs and questions with a greater knowledge of brain injury.

Community Options:

Community is defined as an area that a person lives; people living in a common location, i.e. people receiving support services from a multitude of community agencies.

Brain Injury Alliance of Wisconsin

  • Information & Resources
  • Education
  • Prevention
  • Advocacy
  • Support Services

– Post-acute, Inpatient and Outpatient Rehabilitation

Rehabilitation programs within specialized facilities.

– Vocational Rehabilitation

A specialist in vocational issues who helps the person with a disability develop the skills and aptitudes necessary for return to productive activity and the community.

– Community Resources- Recreational

Program that addresses leisure / recreation, maximizing basic functional skills and daily living. Long term placement during the day, whereby person returns to residence in the evening.

– Education

One may return to school / college or pursue educational opportunities.

– Independent Living Centers

Community-based independent living services for persons with disabilities. People with disabilities work and volunteer at the centers. Services include peer support, information and resources, advocacy, and skills training.

Support Groups

A group established for families and / or persons with disabilities to discuss problems they may be having in coping with their life situation and to seek solutions to these problems.

– Respite

A means for taking over the care of a person temporarily (a few hours up to a few days) to provide a period of relief for the primary caregiver.

– County Community Programs

Community-based programs offered by the county.

– Residential Facilities

A place where one resides, and may include community-based residential facilities, group homes, adult family homes, supported / supervised living.

– Community Resources- Day Programs

An intensive outpatient program, designed to maximize functional skills, address psychological and behavioral adjustment, and vocational rehab. Short term based on functional gains; focus on preparation for community and vocational re-entry.

Resource Library

For individuals with a brain injury, their families and professionals…

Our library contains information on brain injury, including:

  • Over 2000 Books, Journals & Pamphlets
  • Over 60 Videotapes & DVD’s
  • Pediatric brain injury – prevention, safety tips, HeadSmart materials
  • Hospital to School transition
  • Sports and concussion
  • Brain injury fact sheets and pamphlets
  • Personal/Survivor Family account books
  • Journals and periodicals
  • Family adjustment articles
  • Information on Coma
  • Professional/Medical Information on Brain Injury
  • Vocational information
  • Tools for Educators/Schools & Parents on Teaching Strategies
  • Returning to the Community
  • Legal Issue
  • Brain Injury: A Guide for All*
  • The “How To” Access the Community Guide*

Most Books & Videos are available on a loan basis. Please call the BIAW for more information.
*Both manuals are BIAW publications that are available to families/consumers free of charge.

PLEASE CALL FOR LIBRARY HOURS!


Disclaimer:
All external hyperlinks are provided for your information and for the benefit of individuals with brain injury, families, friends, and professionals who work with brain injury. BIAW does not testify to, sponsor, or endorse the accuracy of the information provided on the web sites listed. …supported in part by (2H21MC00021-03) from the Department of Health and Human Services (DHHS) Health Resources and Services Administration, Maternal and Child Health Bureau. The contents are the sole responsibility of the authors and do not necessarily represent the official views of DHHS.