Resources
Here you will find a continuing collection of helpful links to various organizations, services, and programs related to brain injury. We hope that these resources will be useful to you and your loved ones as you navigate the challenges of brain injury. Please feel free to explore and reach out to us if you have any questions or suggestions for additional resources.
This PDF is designed especially for new survivors and their families, but it can be used for anyone still in the recovery phase. It is meant to help condense some of the most important information that is thrown at you and acts as a resource for those who may struggle with organization. You can use as much or as little of it as you need, or copy it onto your own notebook. As a survivor myself, I wish I had something like this when I first started on my TBI journey. Best, Kathryn
The Brain Injury Hope Network
What it Offers: A free digital resource, social community, and brain injury book directory.
Website: tbihopeandinspiration.com
Mayo Clinic Connect
What it Offers: Discussion boards for various health-related topics and support. Also offers blogs and podcasts.
Website: Mayo Clinic Connect
Advocacy & Support Group Information for SOAR Fox Cities
Location: Based in Eastern Wisconsin.
Website: SOAR Fox Cities Advocacy
Wisconsin Department of Health Services, Aging & Disability Resource Centers (ADRC’s)
Note: Reproduced with permission from the State of Wisconsin.
Website: Wisconsin ADRC
The Journal of Humanities in Rehabilitation
What it Offers: A creative exploration of the human experience of disability and healing.
Website: JHRehab
University Place-Virtual Lecture Hall Series
Presented By: PBS Wisconsin.
Additional Info: Search under 'brain'.
Website: University Place
Path-International Equine-Assisted Services
What it Offers: Directory to find a Therapeutic Riding Center.
Website: Path International
National Institute of Neurological Disorders & Stroke
What it Offers: Free publications and webinars.
Website: NINDS Publications
Source: The website of the National Institute of Neurological Disorders and Stroke (https://www.ninds.nih.gov).
Model Systems Knowledge Translation Center
What it Offers: Free research-based rehabilitation resources for TBI, Spinal Cord Injury, and Burns.
Website: MSKTC
The Brain Injury Association of America Challenge Magazine
Highlights: Offers public policy news, research, medical advances, legal & financial issues, and inspiring stories of recovery for over 30 years.
Website: Challenge Magazine
The Brain Injury Association of America
What it Offers: Free articles and webinars for survivors, family members, and caregivers.
Special Offer: Sign up to receive a free PDF 'What to Expect After Brain Injury Guide’.
Website: BIAUSA
Brain Links-Tennessee Disability Coalition
Location: Based in Tennessee.
What it Offers: Free brain injury training, webinars, podcasts, and other resources for professionals and survivors in TN & nationwide.
Website: TN Disability Brain
Early Intervention Resources specifically for children: www.tndisability.org/early-intervention
Brain & Life
What it Offers: Official Publication of the American Academy of Neurology with information and resources for brain health.
Website: Brain and Life
Brain and Life Podcasts
Available On: Apple Podcasts, Spotify, and Libsyn apps — Brain & Life Podcast.
BrainLine
What it Offers: Comprehensive information about brain injury and PTSD.
Website: BrainLine
AnyList App
For shopping lists, cooking and meal-planning - look for it on your App store.
Website: www.anylist.com
The Brain Injury Resource Center of Wisconsin
What It Offers: Our organization provides information and resources to families and survivors who are living their lives after brain injury.
Website: www.bircofwi.org
Help Me Grow Fox Valley
What it Offers: Help Me Grow (HMG) is a system model that works to promote cross-sector collaboration in order to build efficient and effective early childhood systems that mitigate the impact of adversity and support protective factors among families, so that all children can grow, develop, and thrive to their full potential.
Website: firstfivefoxvalley.org/what-is-hmg/help-me-grow-system-model
Safe Kids Worldwide
What it Offers: Safe Kids Worldwide is a global organization working around the world to keep kids safe. Our partners work in 25 countries and in 500 coalitions throughout the United States. So if you’re looking to connect with the people in your area who are making safety a priority – whether it’s childhood safety information or local injury prevention events – we’re here for you.
Website: www.safekids.org/find-your-safe-kids
CBIRT- The Center on Brain Injury Research and Training
Location: Based in Oregon
What it Offers: Videos, recorded webinars, training and tools for people of ALL ages. Return to School (under Tools tab) has information for educators and parents
Website: cbirt.org
Traumatic Brain Injury Center of Excellence
What it Offers: Clinical tools for the assessment and management of TBI, provider training, patient resources, and research information. The Defense and Veterans Brain Injury Center (DVBIC) is a part of the U.S. Military Health System. Specifically, DVBIC is the traumatic brain injury (TBI) center of excellence for the Defense Health Agency.
Website: health.mil/Military-Health-Topics/Centers-of-Excellence/Traumatic-Brain-Injury-Center-of-Excellence
CDC-Traumatic Brain Injury & Concussion
What it Offers: Get the facts, signs and symptoms, response, recovery, prevention and more.
Website: www.cdc.gov/traumaticbraininjury
CDC-HEADS UP
What it Offers: The HEADS UP campaign helps people recognize, respond to, and minimize the risk of concussion or other serious brain injury. It can be utilized by everyone, including medical professionals and sports professionals.
Please note - the use of the material, including any links to the materials on the CDC, ATSDR or HHS websites, does not imply endorsement by CDC, ATSDR, HHS or the United States Government of you, your company, product, facility, service or enterprise. All such disclaimers must be prominently and unambiguously displayed (e.g., “Reference to specific commercial products, manufacturers, companies, or trademarks does not constitute its endorsement or recommendation by the U.S. Government, Department of Health and Human Services, or Centers for Disease Control and Prevention.
Family Voices of Wisconsin
What it Offers: Family Voices helps families navigate health care and community support and services by providing learning sessions, information and resources.
Website: familyvoiceswi.org
Brain Health Magazine
What it Offers: The Brain Health Magazine is a resource for living your best life after brain injury. We strive to offer you a variety of resources and alternative therapies in each issue to help you in your recovery, as well as in your life. This magazine is for survivors, caregivers, and professionals alike! Amy Zellmer also offers a directory of resources on her website (facesoftbi.com) as well as a blog, podcasts and A TBI Book Club and more…
Website: thebrainhealthmagazine.com
Poems In Speech
What it Offers: Mark Harder is a poet and creator of Poems in Speech. He had a stroke in 2018 and says this…”Writing, reading, speaking and listening are still hard. I never wrote poems before my stroke but now it is like therapy for me.” Poems in Speech is a safe group that supports artists with aphasia in their ventures out into the poetry world. They have weekly meetings and you can sign up to join over Zoom with this address mark@poemsinspeech.com. For more information, visit his website.
Website: https://poemsinspeech.com
Virtual Connections - Aphasia Recovery Connection & Lingraphica
Building Aphasia Connections One Session at a Time
What it Offers: Connect with hundreds of individuals with aphasia and their loved ones from anywhere in the world. Live online meetups facilitated by speech-language pathologists and other aphasia experts are available 7 days a week for FREE. New sessions are added every other Thursday!
Questions? Contact Kathryn Paulson: paulsoka@uwec.edu
UPDATED August 2024